28
Nov
16

IT IS VERY IMPORTANT FOR EVERYONE TO KNOW THAT UNCLE BILL & HELEN CAME TO VISIT AND NOW I AM FEELING A LOT BETTER! ❤

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Uncle Bill = Dad + Grandpa + Awesome

“Better” is pretty relative. I’m dealing with a lot of side effects from these steroids that are very unpleasant. From my perspective, if I wasn’t on these steroids, I would feel pretty fine. But since the steroids are the thing keeping my kidneys functioning at all, I guess we can’t really say that. Soooo here we are. Insomnia, mood swings, 25 extra lbs of water weight putting strain on my muscles and joints, and working-for-now kidneys. I think the anemia is getting better — I’m able to carry jugs of juice from the fridge to the counter again without feeling like I might collapse! I’ve more or less got my diet figured out — it’s still an adjustment, but I’m making progress. The salt limit is definitely the tricky one, just because it’s so low. My overall mental state is improving — extreme mood swings and general irritability from the steroids notwithstanding.

To keep my legs more usable, I’ve started keeping them elevated as much as possible. I elevate them when I sleep and I keep them up all day long while I’m working/hanging out. They’re still sausage legs but at least I can walk on them. The skin is still too tight, especially behind my knees, but it’s not total fucking agony. The tradeoff is more of my water weight is sitting in my waist, back, chest, and face causing more pain there. I’ve decided to think of this as me turning into Santa Clause just in time for the holidays! I hit what I hope is peak chubalicious on Saturday morning.

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Ho ho ho amirite?

I’m trying to return to some normalcy this week — part of which is resuming a full work schedule. I know I’m not physically capable of doing a full week in the office with this weight being so susceptible to the whims of gravity, so I’m trying to work from home a couple days and go into the office a couple days and see how it goes. I’ll have a much better idea of what my real limits are after trying to spend a day working in the office tomorrow. I worked very effectively, I think, from home today, but if I don’t get out of this house I’m going to lose my goddamn mind. I’ve already planned to stay home Wednesday, assuming my legs will probably need the day off and if I’m in rough shape from overdoing it, I’ll take a full sick day to recover. Don’t worry everyone!

I’m seeing Josh first thing Thursday morning — hopefully getting a bit more clarity on my prognosis and finding out what the tapering schedule is for these fucking steroids. Also going to take his temperature (heh) on consulting an acupuncturist.

I’m due for my next chemo treatment next week, but I’m trying to get it moved to the week following. I have a lot of shit going on next week that makes blowing up my blood levels again really inconvenient to say the least, but so far I haven’t been successful calling a number to get to a human who can move an appointment on a calendar, so we’ll see how that goes. Wish me luck!

 

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