Posts Tagged ‘side effects

10
Feb
17

Whoops

Of course right after I report things are stable and boring stuff starts careening off a cliff on me.

So a couple weeks ago, Josh decided to change up my BP meds. We didn’t really discuss why. Since we made that adjustment I haven’t been feeling super great — my legs have been extremely weak, like more so than I when I was in the hospital and barely using them. My knees and ankles have  been killing me even more than usual, even though I haven’t been putting any extra stress on them. I’ve been really, really tired. Physically tired. Like, exhausted walking a few blocks tired. It’s been rough. I’ve also been getting headaches again — not as bad at the migraines, but they kept me up for two nights this week.

I blamed the switch on the BP meds–check this ridiculous list of side effects. I’ve bolded everything I’ve been feeling, even though 90% is also just symptoms/side effects of kidney disease/anemia/steroids/stress.

More common:

  • blurred vision
  • cloudy urine
  • confusion
  • decrease in urine output or decrease in urine-concentrating ability
  • dizziness, faintness, or lightheadedness when getting up suddenly from a lying or sitting position
  • sweating
  • unusual tiredness or weakness

Less Common:

  • abdominal or stomach pain
  • body aches or pain
  • chest pain
  • chills
  • common cold
  • cough
  • diarrhea
  • difficulty breathing
  • ear congestion
  • fever
  • headache
  • loss of voice
  • nasal congestion
  • nausea
  • runny nose
  • sneezing
  • sore throat
  • vomiting

Rare

  • Arm, back, or jaw pain
  • chest discomfort, tightness, or heaviness
  • fast or irregular heartbeat
  • general feeling of discomfort or illness
  • joint pain
  • loss of appetite
  • muscle aches and pains
  • shivering
  • trouble sleeping

Minor Side Effects
Less common:

  • lack or loss of strength
  • loss in sexual ability, desire, drive, or performance
  • rash

Rare

  • Acid or sour stomach
  • belching
  • burning, crawling, itching, numbness, prickling, “pins and needles”, or tingling feelings
  • feeling of constant movement of self or surroundings
  • heartburn
  • indigestion
  • muscle cramps
  • sensation of spinning
  • stomach discomfort or upset
  • swelling

I thought it a little ridiculous that while I’m in Josh’s office complaining of bronchitis and coughing all over the place, he prescribes me a drug whose side effects include fucking coughing. I could have been coughing forever! Also, this med is super not recommended for people with kidney problems (which is why we took me off of it in the first place, I thought, back in November!).

So, anyway, I’ve been feeling like shit the last week or so. But then I went for chemo this week and got my blood levels and I’m hella anemic again — hemoglobin down to 8. Nurses started using words like “blood transfusion” again. So that explains the bruising and the increased fatigue at least. I have ideas around why I’m suddenly more anemic and I think I can solve it with some favorable adjustments to my diet — we’ll experiment with that next week. They also went ahead and gave me that injection to boost my blood-making hormones again, so that should help me feel better sooner, too.

But then, the last two days my blood pressure has spiked up to like 150/110 and wasn’t coming down. I was lying awake in bed with a terrible headache unable to sleep for two nights and my blood pressure was through the roof for no reason. This morning it was climbing even higher so I made the executive decision to switch back to my other meds and called Josh’s office to leave a message.

Today’s the worst I’ve felt at work since I’ve been full-time back from the hospital. I ended up leaving a couple hours early because I was having a hard time focusing and really just started getting a little panicked and paranoid about what could be causing this spike in my blood pressure, which I’m sure wasn’t helping.

I’ve been at home decompressing for a couple hours and it’s still elevated, but I just got off the phone with Josh and it sounds like we had a miscommunication regarding my dosage which may explain this trend and we’ve made a new adjustment based on how not interested I am in being on that one with so many ridiculous side effects. Hopefully we can get my BP back down to a comfortable 130/80 again with our new plan.

TGIF

PS Here’s the listed side effects for the two BP meds I’m staying on, ha:

Labetalol

  • blurred vision or other changes in vision
  • chills
  • cold sweats
  • confusion
  • difficult or labored breathing
  • dizziness, faintness, or lightheadedness
  • shortness of breath
  • swelling of face, fingers, feet, or lower legs
  • tightness in chest
  • wheezing

Symptoms of overdose:

  • chest pain or discomfort
  • lightheadedness, dizziness, or fainting
  • slow or irregular heartbeat
  • sweating
  • unusual tiredness or weakness

Minor Side Effects

  • nausea
  • acid or sour stomach
  • belching
  • change in taste or bad, unusual, or unpleasant (after) taste
  • feeling of constant movement of self or surroundings
  • headache
  • heartburn
  • indigestion
  • lack or loss of strength
  • loss in sexual ability, desire, drive, or performance
  • rash
  • sensation of spinning
  • stomach discomfort, upset, or pain
  • stuffy nose
  • burning, crawling, itching, numbness, prickling, “pins and needles”, or tingling feelings
  • diarrhea
  • increased sweating
  • vomiting

Sounds fun, right?

Amlodipine

  • swelling of the ankles or feet
  • difficult or labored breathing
  • dizziness
  • fast, irregular, pounding, or racing heartbeat or pulse
  • feeling of warmth
  • redness of the face, neck, arms, and occasionally, upper chest
  • shortness of breath
  • tightness in the chest
  • wheezing
  • black, tarry stools
  • bleeding gums
  • blistering, peeling, or loosening of the skin
  • blood in the urine or stools
  • blurred vision
  • burning, crawling, itching, numbness, prickling, “pins and needles”, or tingling feelings
  • chest pain or discomfort
  • chills
  • cold and clammy skin
  • cold sweats
  • confusion
  • dark yellow urine
  • cough
  • diarrhea
  • dilated neck veins
  • dizziness or lightheadedness when getting up from a lying or sitting position
  • extra heartbeats
  • extreme fatigue
  • fainting
  • fever
  • itching of the skin
  • joint or muscle pain
  • large, hive-like swelling on the face, eyelids, lips, tongue, throat, hands, legs, feet, or sex organs
  • numbness and tingling of the face, fingers, or toes
  • pain in the arms, legs, or lower back, especially pain in the calves or heels upon exertion
  • painful or difficult urination
  • pale, bluish-colored, or cold hands or feet
  • pinpoint red or purple spots on the skin
  • red, irritated eyes
  • redness of the face, neck, arms, and occasionally, upper chest
  • redness, soreness or itching skin
  • shakiness in the legs, arms, hands, or feet
  • slow or irregular heartbeat
  • sore throat
  • sores, ulcers, or white spots on the lips or in the mouth
  • sweating
  • swelling of the face, fingers, feet, or lower legs
  • swollen glands
  • trembling or shaking of the hands or feet
  • unsteadiness or awkwardness
  • unusual bleeding or bruising
  • unusual tiredness or weakness
  • weak or absent pulses in the legs
  • weakness in the arms, hands, legs, or feet
  • weight gain
  • yellow eyes or skin
  • acid or sour stomach
  • belching
  • heartburn
  • indigestion
  • lack or loss of strength
  • muscle cramps
  • sleepiness or unusual drowsiness
  • stomach discomfort, upset, or pain
  • abnormal dreams
  • anxiety
  • back pain
  • bad unusual or unpleasant (after) taste
  • bleeding gums
  • blistering, crusting, irritation, itching, or reddening of the skin
  • bloating
  • bloody nose
  • burning feeling in the chest or stomach
  • burning while urinating
  • burning, dry, or itching eyes
  • change in color of the treated skin
  • change in sense of smell
  • change in taste
  • changes in vision
  • constipation
  • continuing ringing or buzzing or other unexplained noise in the ears
  • cracked, dry, or scaly skin
  • decreased sexual performance or desire
  • depression
  • difficulty with moving
  • difficulty with swallowing
  • discharge, excessive tearing
  • double vision
  • dry mouth
  • dryness of the skin
  • excess air or gas in the stomach or intestines
  • excessive muscle tone
  • eye pain
  • feeling of constant movement of self or surroundings
  • feeling of unreality
  • feeling unusually cold
  • flushed, dry skin
  • fruit-like breath odor
  • full feeling
  • general feeling of discomfort or illness
  • hair loss or thinning of the hair
  • headache, severe and throbbing
  • hearing loss
  • hyperventilation
  • increased appetite
  • increased hunger
  • increased sweating
  • increased thirst
  • increased urge to urinate during the night
  • increased urination
  • irritability
  • irritation in the mouth
  • lack of feeling or emotion
  • loose stools
  • loss of memory
  • muscle pains or stiffness
  • muscle tension or tightness
  • muscle weakness
  • nervousness
  • pain
  • pains in the stomach, side, or abdomen, possibly radiating to the back
  • passing gas
  • problems with memory
  • redness and swelling of the gums
  • redness, pain, or swelling of the eye, eyelid, or inner lining of the eyelid
  • restlessness
  • runny nose
  • seeing double
  • sensation of spinning
  • sense of detachment from self or body
  • shakiness and unsteady walk
  • shivering
  • sleeplessness
  • sneezing
  • stuffy nose
  • sweating
  • swollen joints
  • tenderness in the stomach area
  • thirst
  • trouble in holding or releasing urine
  • trouble sleeping
  • twitching
  • unable to sleep
  • uncaring
  • unexplained weight loss
  • unsteadiness, trembling, or other problems with muscle control or coordination
  • waking to urinate at night
  • weight loss

Oh look, a list of things a human might feel. 

I have to get off of these meds.

05
Feb
17

There hasn’t been much to report lately — things are pretty stable.

I oscillate between depressed, totally fine, and a little manic every few days. I’m in constant but manageable pain; my knees and ankles, other joints, my left flank, my face. I’m tired pretty much all the time, but rarely to the point that I can’t get out of bed, so I power through. I’ve had bronchitis for two weeks and the coughing has a caused a constant soreness in my ribs and chest.

My main kidney numbers still aren’t getting any better — my creatinine has been going up, it hovers around 2.5 – 4 which is where it was before I checked into the hospital three months ago. Despite that, my GFR is holding steady at around 12-14. I’ve been picking up more subtle symptoms of kidney failure, like bad breath caused by waste build up in my body and cramps in my legs and hands. It’s a total blast. Josh says my other numbers are showing improvement though. My potassium and phosphorous levels are good and my protein filtration is better. I asked if that’s just because I’m limiting stuff in my diet, but he assures me it’s indicative of my kidney function improving. Either way, despite my borderline numbers it sounds like I’m still aways from needing dialysis, so that’s good.

I was supposed to have my transplant evaluation a couple weeks ago, but I had to postpone it because my insurance didn’t approve it in time. The next available slot isn’t until the end of February, which I’m scheduled for and has been approved and I’ve done my blood test for already. Once that’s done, we can start screening potential kidney donors for me. I have some very generous volunteers lined up. No one has anything positive to say about their experience trying to get a kidney transplant. Mine is already not off to a great start. I’d like to get it out of the way before Trump fucks up our healthcare system even more.

img_1278

Proof!

My blood pressure is still a little high — 135/90 most of the time. We’ve switched up my meds again; off a beta blocker and back to an ACE inhibitor, but I think it’s making me feel worse so I’m going to talk to Josh about it. Still on the calcium channel blocker. Still on antibiotics. Still taking tons of calcium supplements, vitamin d, and iron. Still on the prednisone, but we’ve tapered my dosage to half what it was when I left the hospital, and I get to taper it to even less over the next month, so maybe I’ll get my face and sunny disposition back soon. I am a little concerned that the boost from the steroids is what’s kept me going the last few weeks and without them I’ll be too tired, but that’s not worth these side effects.

Now that I’ve successfully hacked my diet (seriously, someone in kidney failure should not be eating meat or dairy — it’s really fucking simple, and I can’t believe no one said that) things are better. Sausage D doesn’t happen very often anymore; I keep my feet up as often as possible, so I can wear my normal shoes again. Last time I had chemo I only gained 6 lbs from the fluids and it only took me a few days to lose it. I have chemo again this week, hopefully it goes about the same way.

I’m not too sure what’s up with my anemia. My numbers were trending well, but they dipped a bit last week and right now I am covered in bruises and I’ve been really tired. I’ll get more tests at chemo this week, so I guess we’ll see where things are.

Besides being tired and in pain and my face being totally swollen all the time, I’m basically fine I guess. Work is going to stop being so crazy now that it’s not January anymore, so hopefully I can spend some time looking into alternative treatments to manage my symptoms. I also really need to make an eye appointment because my eyes are fucked up and I don’t know if it’s because of the meds or just strain or both, but I feel like I’m going blind half the time and it’s hurting my head. I’ve been trying to exercise more — walking around, taking the stairs a bit, but it really wears me out and hurts my legs, so I’m not sure what to do about that. I had to jog about half a block to catch my bus home the other day and my legs were really close to collapsing under me. But, my heart felt good!

I’m over this you guys.

30
Nov
16

SausageD’s Big Day Out!

I went to work yesterday you guys!

And it was great! I worked the whole day and didn’t collapse!

I was definitely tired by the end of the day, but I spent all day meeting with people to get caught up on three weeks, so I’m pretty sure that would have worn me out anyway. I was also there for a pretty long time, nearly 10 hours, haha. But I was in surprisingly better shape than I expected to be by the end of the day, and I still feel good today —  a little sore at my knees and ankles, but nothing unbearable. Staying off of them today and keeping my feet elevated. No headaches, or dizziness, or overwhelmed feelings yesterday — all wins! Hand sanitizer is my slimy new best friend.

I had about an hour this morning where I guess the distribution of water in my body was in perfect equilibrium with my skin and I didn’t feel like Sausage D anymore!

I got really excited. I thought maybe my skin had resized to accommodate my new weight and I would just be a little husky now, but otherwise feel like a person again. Unfortunately, it didn’t last. 😦 Curse you, gravity!

I have my follow-up with Josh tomorrow and a long list of questions to ask him.

I delegated the responsibility of trying to get next week’s chemo treatment rescheduled to Mom and she’s having even less luck getting a human to talk to her than I did 😦 but I get my tenacity from Mom, so she’ll get through eventually. 🙂

I think I’m feeling a little sensitive to my iron supplement today — I’ve been able to taste it all afternoon and my tummy’s pretty rumbly. UGGGGGGGH. I did a Google Sanity Check and found this great list describing the VERY CLEAR OVERDOSE I HAD IN THE HOSPITAL (gross):

Iron_Supplement__Oral_Route__Parenteral_Route__Side_Effects_-_Mayo_Clinic.png

Plus thinking my heart might explode.

Fuck that IV Iron man, I’m never doing that shit again.

 




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